The Individual Family Service Plan Day.....UGH!!!!



i don't know what i was thinking when i woke up this morning.  i did a little shopping, even baked cookies for the meeting!  i wasn't even dreading it one little bit!  i was looking forward to ALL of wyatt's favorite people (his therapists) being here together!   you see, i think that wyatt is doing terrific!   sure, i want him to walk....desperately!   i want him to talk more.....desperately!  i just forgot that he is doing terrific.....in HIS little world.   not out there in the "typical" world.....on the typical milestone charts~UGH!!!!

and then they started talking about what he's doing now, and what their goals are for him for the next 6 months.   wow.  i knew, but didn't realize how far he lags developmentally.   i don't take him in the church nursery much, because he gets sick every time we go there.....  so i forget how far behind the other kids his age he is.  

we started with his physical therapist, joanna.   she wants him to walk.  that has been her goal for him since.....forever it seems like!   so in the gross motor area he is developmentally 12-13 months.   occupational therapist, shelley, scored him developmentally at 18 months for fine motor skills, and 15 months for self-help skills.  self-help is rated low mainly because he does not consistently drink from a cup....because he is still nursing.   so some of her goals for him are to drink from a cup and draw circles and lines.  

"i am so bored!"

speech therapist, kenalyn, scored his expressive speech level at 17 months, and his receptive speech at 20 months.   she wants to hear more from him...more sounds, more words, more signs.....more, more, more!  me too!    i feel like he expresses a lot of frustration through hitting, biting, and fit-pitching because he cannot communicate his needs and desires.    

his developmental specialist, vicki, scored him at 21 months socially (he takes after me!) and cognitively at 19 months.   her goals for him include identifying 30+ objects and pictures by pointing to them, and putting together 3-6 piece puzzles.  (he DOES NOT LIKE puzzles!)    and he needs to stop throwing things!!!!!   seriously!!!!  

but wait, there's more.....so i mention that he has had a little more open mouth posture lately, with some tongue protrusion...when he is tired mainly.  someone says that might be because he is still nursing, which uses different tongue movements, etc.   and, well, maybe that nursing is affecting some of his ear infections/fluid in his ears.  maybe the eustachian tubes with low tone and nursing are combining to cause some of his issues.   UGH!!!!       oh, and i forgot to add that his developmentalist and his speech therapist both believe that he needs the bone conduction hearing aid again......just to be safe, since he's having so many issues..... UGH!!!     

so i cried.  and i've cried all afternoon.  i cried through lunch with donna....i'm sure she wishes that we had chosen a different day to have lunch together!  (not really!) lol!   i cried to tim, telling him everything over the phone.  i cried when anna called to check on me.  i cried when larramie called to check on me.   i cried when my mom asked "does anyone else think he should be walking?"   (which she asks basically every day)...... um....no mom, nobody wants him to be walking......UGH!!!!!   

it's been a long day, and now my power is out and i am getting hot.....a very long day.......