i blog about my life...i am a Christ follower, wife, and mom to three terrific sons; a college student, a pre-teen, and a preschooler who happens to have an extra chromosome! i love God, i love my family, and i love people!
Wednesday, February 29, 2012
WOW! Wyatt's Month of Valentines Comes to an End!!
wow! i can't believe that we are wrapping up wyatt's whole month of valentines! i hope that you all have enjoyed wyatt's lovely ladies as much as i have enjoyed writing about them! a great big thanks to all of their mamas and daddies who allowed me to share them with you all!
these are the valentines that wyatt mailed to all of his girlfriends!!!
pretty cute, huh?
and as many beautiful little girls as i have shared, there are still so many more in our online Down syndrome community who i didn't share! as you can see, our little ones with Ds ARE more alike than different! they each have families who love them, different likes and dislikes, different temperaments, different strengths and weaknesses! JUST LIKE EVERYONE ELSE!!
blessings......
Tuesday, February 28, 2012
Elizabeth, AKA Liz, AKA Lizard.....SAYS "YES!"
elizabeth is known by so many names.....elizabeth, liz, lizard.....i imagine she answers to all of them! she is a sweetie pie from washington state who has been wyatt's friend for a long time! her mama, denise, and i go way back, and have been through a lot of medical emergencies with liz! we have had the privilege of praying her through lots of "stuff," including open heart surgery last year! she's a cutie pie!!!
Monday, February 27, 2012
An East Coast Girl!!! Charleigh says "YES!"
today wyatt's valentine is another "older" woman! beautiful charleigh is the daughter of my dear friend roxanne! roxanne is a very gracious lady who showers all our kids with love and goodies! i am so thankful for her friendship and that she shares precious charleigh with us!
Charleigh lives with her Mommy, Daddy, and cat Buddy in New York! She loves Minnie Mouse, McDonald's chicken nuggets, music and playing dress-up!!! She also loves iCarly and Bigtime Rush!
She LOVES being a little (and young!) Auntie!!!
She is in her 2nd year of dance, and this dance picture was featured in the New York City Buddy Walk Video this past year!
Charleigh says "YES!!! I sure will be yours!!!!"
Aunt Charleigh with Mia!!!! |
She LOVES being a little (and young!) Auntie!!!
She is in her 2nd year of dance, and this dance picture was featured in the New York City Buddy Walk Video this past year!
Charleigh says "YES!!! I sure will be yours!!!!"
Sunday, February 26, 2012
"A Perfect Lily" Says "YES!"
wyatt's valentine today is another west coast girl! the lovely lily is the youngest daughter of my dear facebook friend and fellow blogger, patti! patti and lily are tireless advocates and fundraisers for orphans and their adoptive families, especially through reese's rainbow! patti's blog, "a perfect lily, letters to my daughter" chronicles their daily lives, as well as advocates for those orphans in need!
Mom Patti says that Lily's favorite foods are vanilla yogurt, popcorn and PLAIN cheerios, lol. If we try to sneak honey nut cheerios in her bowl she spits them out!
Her favorite people are her nine brothers and sisters :)
She also loooves music, and starts dancing whenever she hears it.
She is very tiny- she's only 17 pounds and 27 inches (at two years old!)
Mom Patti says that Lily's favorite foods are vanilla yogurt, popcorn and PLAIN cheerios, lol. If we try to sneak honey nut cheerios in her bowl she spits them out!
Her favorite people are her nine brothers and sisters :)
She also loooves music, and starts dancing whenever she hears it.
She is very tiny- she's only 17 pounds and 27 inches (at two years old!)
Saturday, February 25, 2012
Celebrating Wyatt's Happy Healthy Heart Day!!!!
we must take a break today from all the lovely valentines that said "yes" to wyatt's request to be his valentine! (don't worry, there are still a couple more!)
immediately after the surgery..... |
amazing support! |
love this picture of mom and dad with wyatt..... |
in some ways it seems like forever since those long days leading up to his surgery, and in some ways it seems like yesterday! we only had about a month to wait once it was determined it was time to have surgery! he was 6 1/2 months old when his cardiologist decided to send his records to the surgical team in atlanta for them to assess his ASD and VSD. to be honest, we were shocked! we truly thought the holes would heal and he would not need surgery!
within a week we were called to schedule surgery! the time just flew by, with all the preparations it required! we had to make arrangements for our older boys while we would be gone, as well as all the details that surgery entails! we were so blessed by offers of help, gifts of snacks, restaurant gift cards, notes of encouragement, coins for vending machines, magazines, etc! our church family really stepped up to bless us during that time!
putting on a brave front..... |
hanging out at the ronald mcdonald house after dinner! |
it was a blessing to be surrounded by our family and friends; especially on his "practice surgery day!" wyatt's surgery was actually postponed 1 day due to an emergency surgery. we had already arrived at the hospital and had been taken back when we received word that his surgery would not happen that day. so we spent the rest of that day visiting with our family and friends. we were also blessed to stay in the wonderful ronald mcdonald house, which is an amazing charity!
this is it.....the real deal....sleepy juice taken... waiting to be taken back!!! |
the only "problem" we had post surgery was convincing his surgeon to allow him to NURSE quickly!!! but once we moved to the step-down unit, his nurses allowed us to return to nursing! we were only at the hospital for 4 days before we drove the 6 hours home....that was scary!!! taking your baby home (far away from the hospital) just 4 days post surgery!!!
unless you have experienced handing your baby or child over to a surgeon, knowing that they are going to open his chest, holding his heart in their hands, you can never understand the emotions, the fear that we felt that day. even though we have a strong faith in our God, it was still such a scary time. we praise God that all went well, and wyatt's heart is completely fixed! and we encourage other parents who will have to walk that same path.... we cannot take away their fear, but we can walk alongside, hold their hands, pray for them, and tell them we understand....
our heart warrior! 2 days post surgery!!!! |
Friday, February 24, 2012
Coloradan Claire Says "YES" to Wyatt's Question!!!
cutie pie claire is wyatt's valentine from colorado! her mommy, melissa, and i are facebook friends as well as fellow bloggers! she is getting ready to have a baby in march, and their lives are very busy right now! i appreciate her taking the time to include claire in wyatt's valentine posts! i know that you will love her blog, "moo's crossing"!!! melissa shares a little about Claire... enjoy!
Claire can't wait to be a big sister and spends lots of time with her baby dolls and the babies at daycare. She loves to give them kisses and hugs. She is going to be an AWESOME big sister!!!
Claire can't wait to be a big sister and spends lots of time with her baby dolls and the babies at daycare. She loves to give them kisses and hugs. She is going to be an AWESOME big sister!!!
She loves "Wheels on the Bus," "Head Shoulder
Knees and Toes," and anything else that she can dance to. She LOVES music, and
has even been known to be inspired by particularly catchy
commericals. ;)
Let's see, Claire's favorite food is, um....CHEESE!!!! Cheese, cheese, cheese. Cheese sandwiches, cheese ravioli. Chicken is a close second but cheese tops the list. Other favorites are applesauce and green beans. She doesn't really like fruit, and has her dad's non-existent sweet tooth.
Let's see, Claire's favorite food is, um....CHEESE!!!! Cheese, cheese, cheese. Cheese sandwiches, cheese ravioli. Chicken is a close second but cheese tops the list. Other favorites are applesauce and green beans. She doesn't really like fruit, and has her dad's non-existent sweet tooth.
Claire loves to be outside, and will get her
coat and hat, stand by the gate and say go, go go! She can't get enough
of swinging or sliding, or buggy rides with her dad.
Thursday, February 23, 2012
Violet Very Shyly Says "YES!"
wyatt's girlfriend today is another "real life" girlfriend! we have "known" violet and prayed for her since she was in her mommy's tummy! they only live a couple of hours from us, and we will soon live very close to each other when we move! although she has another serious beau, kaleb, she was still willing to "spread the love," and be wyatt's valentine too! her mommy, amber, shares their lives on two blogs; "growing a violet" and "365 photo challenge! enjoy!!!
Violet's favorite things are frilly dresses! She seriously gets mad if she is just in a onesie. She is very much the girly girl and she loves all her accessories like purses, leg warmers, bracelets and hats.
She loves her stuffed animals, Mr Hippity Hop, Ducky Mo Mo, and Kanga the kangaroo the most of all.
Violet absolutely loves music....all kinds!!! She loves Adele and Enya and any old blues singers! Her favorite song for me to sing to her is Allouette in French. For some reason she likes French nursery songs but not English ones. She loves sign language and we have done it with her since birth. Her first sign was mommy and her second sign she is trying to do is train (she loves Chugington). Her favorite movies are The Lion King and Dumbo. The opening song (Circle of Life) can come on and she will stop in her tracks every single time! Doesn't matter if she is throwing the tantrum of the century she will quit just to listen to that song and then she will pick up her screaming as soon as it goes off. She will give you the stink eye if you talk or do anything while HER song is on. It is absolutely hilarious!!!
Violet's favorite things are frilly dresses! She seriously gets mad if she is just in a onesie. She is very much the girly girl and she loves all her accessories like purses, leg warmers, bracelets and hats.
She loves her stuffed animals, Mr Hippity Hop, Ducky Mo Mo, and Kanga the kangaroo the most of all.
Violet absolutely loves music....all kinds!!! She loves Adele and Enya and any old blues singers! Her favorite song for me to sing to her is Allouette in French. For some reason she likes French nursery songs but not English ones. She loves sign language and we have done it with her since birth. Her first sign was mommy and her second sign she is trying to do is train (she loves Chugington). Her favorite movies are The Lion King and Dumbo. The opening song (Circle of Life) can come on and she will stop in her tracks every single time! Doesn't matter if she is throwing the tantrum of the century she will quit just to listen to that song and then she will pick up her screaming as soon as it goes off. She will give you the stink eye if you talk or do anything while HER song is on. It is absolutely hilarious!!!
Violet says "YES!" I will be Wyatt's Valentine!!!
Wednesday, February 22, 2012
Texas Sure Has Some Pretty Girls! Meet Wyatt's Valentine, Sadie!
well, wyatt does have texas roots, so it's not a big surprise that he has yet another texas girlfriend! sadie's mama, stephanie, and i are facebook friends who not only share Down syndrome in common, but sensory issues as well! i know that you will enjoy these wonderful pics of completely adorable sadie!!!
Sadie is the youngest of 4, she has 2 brothers & a sister. She loves to eat, the only food she does not like is potato salad. A few of her favorites are cheeseburgers, quesadillas, tacos, chips/guacamole, bananas, oranges & kiwi.
Sadie is very smart, she loves Signing Time (she knows well over 200 signs - we lost count, but also has a large verbal vocabulary) and Tangled/Rapunzel. She enjoys playing on the iPad (she's a little pro at working it) and playing with her babies, especially the one that cries, coos and says "Mama".
Sadie is the youngest of 4, she has 2 brothers & a sister. She loves to eat, the only food she does not like is potato salad. A few of her favorites are cheeseburgers, quesadillas, tacos, chips/guacamole, bananas, oranges & kiwi.
Sadie is very smart, she loves Signing Time (she knows well over 200 signs - we lost count, but also has a large verbal vocabulary) and Tangled/Rapunzel. She enjoys playing on the iPad (she's a little pro at working it) and playing with her babies, especially the one that cries, coos and says "Mama".
Sadie is so smart that
she said "YES!" to Wyatt!!!
Tuesday, February 21, 2012
Another Texas Beauty? Wyatt's Girlfriend Grace!!!
precious little grace, who LOVES to smile for the camera, is one of wyatt's "real life" girlfriends who we have had the pleasure of meeting in person! her family lives just about 20 miles from wyatt's texas grandparents, and so we have the chance to get together sometimes! her mama, felicia, and i first met on facebook, through our online Down syndrome community, and became fast friends! enjoy!
Like a little woman
already, Grace had to make Wyatt for his answer.
Grace has been so busy
these days!! She is counting down to celebrating her 2nd birthday in
March. But she started the terrible twos attitude weeks ago. Mommy thinks its
going to be a long year. She is definitely a young lady that knows what she
wants and likes to run the show. We are a girly girl already. Love jewelry,
purses, and playing in other people’s hair. Grace runs the house, or at least
her two older brothers, who are completely wrapped around her cute little bent
pinky finger!
Grace lives in Pearland,
Texas and attends the Rise School of Houston, which is a school for kids with
Special Needs, but mainly Down Syndrome. She LOVES school!! At school she gets
to do art work, have music time, play in a huge room full of balls and mats, and
look at her self in a wall full of mirrors. At school, we are told that she
loves to HELP and instruct her classmates on what we are doing. The little
teacher in the making!!
Grace loves music. Her two
favorite cartoons are The Princess Frog, and Tangled, and I really believe its
because of all the beautiful songs. She sings along in her soft little voices
and raises her hands in the air as a “ta-da” at the end of the song. Her
favorite song these days is “We found love” by Rihanna, yes, sad but true.
Whenever the song comes on the radio you can hear her humming, dancing and
singing along to the song. Maybe we aren’t a teacher in the making…but a star
instead!!
Grace got to meet her long
distance valentine, Wyatt, when she was only a few months ago.....
She knew there
was a bond then…so YES!!! Wyatt, Grace would LOVE to be your
Valentine!!
Monday, February 20, 2012
Seriously, Wyatt? You Asked TWO SISTERS to Be Your Valentine???
charity, their "sister across the sea!" can you help bring her home??? |
enjoy what deanna has to say about her girls!
"Lucy likes to eat, and Ragen doesn't. Lucy is my chocoholic and Ragen can eat her some strawberry ice cream. Ragen likes to go go go and Lucy likes to sit and cuddle. Ragen is a singer and VERY vocal, and Lucy loves to just smile and watch her big sister. They both LOVE Signing Time and Sesame Street. They both love their bath that daddy gives them every night and then they sit one at a time at mommy's vanity while mommy does their hair. Ragen is learning to be a great big sister...she is beginning to help mommy push her little sister in her stroller or grocery cart when we are out and about. They love to play catch with each other and pretend feed each other and have on occasion, as of recently, gone upstairs into their bedroom, shut the door and played together without me! I'm sure that Charity will make a wonderful addition to this dynamic duo and they will become a fabulous trio! "
I heard the craziest thing, Lucy...I heard that Wyatt asked BOTH OF US to be his Valentine!!!! Isn't that the silliest thing you ever heard?
But we are NOT going to let this tear us apart! We are sisters and best friends.... no boy, not even one as cute as Wyatt, is going to come between us!!! I PROMISE!!!!
Sunday, February 19, 2012
Another Older Valentine! Meet Beautiful Samantha...
wyatt's valentine today is the beautiful sammi! although she is an older woman, wyatt couldn't resist those beautiful eyes......he insisted that i ask! sammi's mommy, becca, and i are facebook friends as well as fellow bloggers! you don't want to miss her wonderful blog, "the bates motel!"
Samantha (Sammi) is 5 years
old, and an only child, other than her 2 geriatric cats. She's the absolute
light of her Mommy's and Daddy's lives. She's in Kindergarten and
loving it, reading just about any book you hand to her, and starting to learn
math (Mommy's *not* smarter than a Kindergartner, btw...). She's starting to
show her true colors, gravitating towards the boys in the class.
thinking about this valentine thing.... |
Samantha loves to watch Olivia and Max & Ruby on TV, loves dancing with her Daddy, loves the swings at the playground, loves the beach, loves to play doctor, and is a very picky eater, relaxing her standards only occasionally if the item in question is dipped in ketchup.
Daddy is from England, and has started early teaching her about her culture. She watches football (soccer) with him, and yells "Goal!" when someone scores. "Go Wolves!" (Daddy's favorite team) is the favored chant every weekend, although personally I think it may be time for her to find a new team (oops, did I say that out loud?)......
She'd love to meet Wyatt one day, and would certainly love to be his Valentine!
Saturday, February 18, 2012
Meet Molly.....Wyatt's Marvelous Red-Haired Valentine!
another of wyatt's many girlfriends is the lovely red-haired molly! her mommy and i have been facebook friends for quite a while, and we have had the great privilege of praying for her through some scary health issues! we have come to love molly a lot! enjoy what her mommy shared with us.....
Molly just turned 3 last Sunday…she started going
to “big girl” school on Monday. She will go in the mornings and will be with other
kiddos who need special attention. Molly lives at home with her Mommy &
Daddy, her big sister – Lily (age 8) and big sister – Olivia (age 4). She also
has a four-legged brother, Toto, who she tries to chase and give him extra
love.
Molly’s favorite food right now is potato chips. She learned to sign eat
(her second official sign) last week during speech therapy so that she could
“eat” more potato chips.
Her favorite activity is jumping. She has a Jumperoo
which she loves to be in whenever she can. Molly also loves talking in “Molly
talk” very loudly and singing. She “sings” with the choir at church each
Sunday. I’m not sure how they all feel about that, but no one has complained
yet J
Molly has a very large fan club on facebook and in our
community. It is very nice to have so many people praying for her whether we
are going through a medical crisis or not. Last winter, Molly added epilepsy to
her list of “fun!” She has been seizure free since June and we are very
grateful for her physician, Dr. James Wheless, in Memphis who took such great
care of her. We are also very grateful for the Cochlear Implant Team at St.
Louis Children’s Hospital who try to find unique tools to help with her hearing
issues. Molly has a profound hearing loss in her right ear and a moderate to
severe loss in her left ear. She currently wears a hearing aid in the left ear
and a BAHA on a elastic band around her head. One of the on-going challenges is
trying to find the best way to amplify language so she can learn to
talk…something we hope will happen but are not sure at this
point.
Molly is a joy to our lives and has turned everything upside
down. We now know what is important in life and she taught us that lesson. I quit working full-time to stay home with all of the girls 9 months after Molly’s
birth. It has been a welcome change for all of our family members. Molly has
also encouraged me to take care of myself and I have started running and working
out 5-6 days a week. This is a great stress reliever and good for
everyone.
What else can I say…we all love her! Who could resist that
smile and red hair? J
AND SHE SAID "YES!"
SHE WILL BE WYATT'S VALENTINE!!!
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